Well its friday night and
it has been a very long week. Jayden seems to be getting used to the new meds and the increases in them. He is finally showing
some signs of strength again, Jenny & I even got him to take a couple of steps with us supporting him. He is a real trooper
throughout this, he continues to smile and even giggle a little bit. Today he said mom again very clearly to Jenny. He is
trying so hard to get through the fog and we are so proud of him. He is truly amazing to watch. These days are long, stressful,
exhausting and constantly watching the clock with not enough time in the day to get everything done, but we are so very very
thankful to have them. Sometimes when we think we cannot take anymore we step back and look at Jayden and he just warms our
hearts and restores our strength and faith, and we know it will be ok. As long as it takes we are on this journey together
and nothing will stop us! Nothing! And how can it with Super Jayden leading the way, he has accomplished so much in his life
already and he has so much more to do. We are so proud of him. We look forward to seeing friends both old and new on sundays
meningitis walk and on monday at the golf outing. It is truly because of your continued prayer and support that we carry on
thank you. Good night and God bless. Love Andy, Jenny & Jayden
Oh what a beautiful day!
to the Alexa meningitis walk a thon today at Packanack Lake. The weather was beautiful and the people were even more beautiful.
The walk was in memory of Alexa Senyk http://www.meningitis-angels.org/alexa_taylor_senyk.htm a beautiful baby girl who was
taken by meningitis. We spent the day with her family, her wonderful parents Michele and Chris and brothers chris and Zak
and the rest of the wonderful family. We also had the opportunity to meet Frankie Miley the founder of www.meningitis-angels.org
who also lost her son Ryan http://www.meningitis-angels.org/ryanhb.htm to this horrible disease, Frankie is an amazing person
who has devoted her life to doing all she can to stop this terrible disease and to inform people about meningitis. Her strength
along with Michele and Chris is truly inspirational. We met Johnny D' Antona http://www.meningitis-angels.org/johnnyeb.htm
who is a true survivor of meningitis and one amazing young man, his family was absolutly wonderful. And of course our favorite
Angel Carye Wynn http://www.meningitis-angels.org/caryeeb.htm and her mom Kate who have been there for us from the beginning.
We met so many wonderful and caring people today there, and of course we also had the Angels from above watching over us it
was a perfect day.There was a beautiful walk around the lake, great food provided by the Outback Steakhouse from Wayne Thank
you. A very special thanks to the Passaic County Sheriff's Department Mounted Squad for being there today, everyone loved
the horses. Thank you to the Wayne Police Dept for your traffic control. Jayden had a great time seeing all the smiling and
friendly faces and even got a kiss from one of the horses, it made him laugh. We would like to again thank everybody we met
today for there support, and thank those families who have also been touched by this terrible disease for there strength and
help. We will continue to stay in touch and have found some great friends for life. Good night and God bless to you all. Love
Andy, Jenny & Jayden
First of we want to say a great big thank you to everyone involded
with the Golf outing for Jayden on monday. We heard it was a great time. We were unable to attend due to we increased Jayden's
med the night before and he was really out of it on monday. We had a good day today finally going back for his therapies in
over a week, it was great to see everybody at Children's Specialized hospital. Jay did pretty good we are still behind because
of the seizures and the increased meds. We are noticing he is getting used to the meds pretty quickly, and today his seizures
were a little diffrent, hopefully getting better. We hope and pray we are on the right road with the meds. It was a very long
day today and we are exhausted, so we will call it a night. Good night & God bless. Love Andy, Jenny & Jayden.
again to everyone at the Passaic County Sheriff's Dept especially Dan & Leo for Golf outing for Jayden. Thank you to everyone
who was involved and supported it. We love you all!
Jayden is doing OK, he is doing
a little better with the seizures, they are changing again which is driving Jenny & I crazy, but over all Jays is doing a
little better. We must watch him like a hawk for his everymove can set off a seizure. He is beginning to seem a little less
tired, but still his balance is off. When he sits up which is struggle he is very wobbly and usually falls over. Today is
6 months since Jay got sick, it seems like 6 years to Jenny & I. It is a very long long road and you all know has been a very
bumpy one so far, but we have faith it will soon get smoother. And are thankful for everyday with Jayden as tough as they
may be. We had a nice visit today from Jay's teacher Casey Crane, we are sure it was very theraputic for Jay and got some
more brain waves working, Thank you so much. We hope in upcoming weeks as Jayden gets adjusted to the meds and the seizures
hopefully diminish he can resume making progress and moving forward.We cannot wait. Thank you all for your continued prayer
and support. Love Andy, Jenny & Jayden
Jayden is trying so hard, but right now its a
uphill battle again. The doctor called us last night and said she was concerned with Jay's seizures and the fact he is getting
more tired either from the meds or the seizures. So she told us to cut down his meds to see if he would perk up. We cut the
meds last night and Jayden is a little more perked up but when he has the seizures today they are stonger and a little more
frequent and they really wipe him out. He even cried a little during one today, and screamed after another one. Jay is trying
so hard, he looks at us with almost perfect clarity in his eyes and just wants to communicate with us but he cannot. It is
so frustrating. The doctor said we have to get to the bottom of this fast, so we will probably be back in NY at Presbyterian
Hospital most of this week. Jayden is going backwards now and we cannot have that! We will get through this. A special thank
you to our friends who stopped by last night we had a great time. Jenny and I needed a little distraction. Thank you all for
your continued prayer and support. Good night and God bless. Love Andy, Jenny & Jayden
very simply things are not going too good. Jayden is beginning to go backwards due to the meds and seizures, he has no energy
to eat or drink and very little muscle control. So we will be heading out to NY Presbyterian Hosp this morning where his doctor
wants to get very agressive with the meds and find a solution. It will probably know Jay out and he may go back on a feeding
tube but we will do whatever we can. It has become very frustrating for Jenny & I to watch Jayden going backwards. We will
probably be in NY for quite some time, we will just live there with Jay untill we have answers. We will try and keep you updated.
As always we appreciate your continued prayer & support to get us through this time. We must continue forward on our journey!
Love Andy, Jenny & Jayden
We are home once again. We spent 4 days in NY at Presbyterian
hospital with Jayden's epileptologist Dr Leary. She said she would get aggresive with the meds and not let us go home until
things were under control. When we went on tuesday morning, Jayden was like a rag doll with little or no muscle control, he
could not hold up his head and Jenny & I had to move his mouth to get him to eat or drink, he was also coughing because he
was not swallowing right. We got to the hospital and they hooked Jayden up to all these moitors on his head and put us back
in the room with a camera that followed and recorded his every move. Jayden was give a valium type med to relax his brain
waves so the anti seizure meds could be allowed to work. Well we were very happy when wednesday came and went with no seizures,
the frist day in months. Thursday he had 2 very small seizures in the morning, but then no more. We found out it was the seizures
not the meds that were making Jayden so weak and sleepy. So now we up his anti seizure meds again but he will be on valium
for a couple of days to relax his brain so the meds can begin to work in, which the seizures were not allowing the meds to
work due to all the seizures. Jay went all day today with no seizures. Most importantly he has his strength back, trying to
sit up and roll around and he even tried to crawl today. He is trying to talk again, and imitating our facial expressions
a little today. We hope we are back on track. He ate solid foods today and drank liquids very easily, something he has not
done in weeks. It was a good day today, and of course it is great to be home. I think Jenny & I may actually get a little
sleep tonight, something we have not in weeks due to stressfull days. We thank you all for your phone calls, emails and strength
during this time, we needed it! Thank you all for your continued prayer & support. We continue this journey in an upward direction
once again. Good night and God bless. Love Andy, Jenny and Jayden
HERALD NEWS ARTICLE
a wonderful news article in todays NJ Herald News written by Rev. Theresa Nance. Thank you for the beautiful article.
'superman' fights on
Sunday, October 17, 2004
By THERESA NANCE
Christopher Reeve is dead.
with his handsome looks and awesome talent, played the man with the letter "S" on his chest in the person of America's crime
Reeve's ability to fight the good fight of faith will outlast any character he portrayed on the
silver screen, in my judgment.
However, there's another man who may not be as well known as Reeve. He, too, wears the
letter "S" on his chest, sort of. His name is Andy Singer. Sgt. Andy Singer.
He is employed by the Passaic County Sheriff's
Department. Andy, like Reeve in his lifetime, is fighting the good fight of faith, not for himself, but on behalf of his 3-year-old
Jayden has been stricken with bacterial meningitis and is spending many of his young days at Children's
Specialized Hospital in Mountainside.
I spoke with Singer on the telephone last week. He is stoic, steadfast, serious
and saddened by the events over which neither he nor his wife have any control. Yet he's the man with the letter "S" on his
chest - sort of.
Like the fictional character, Singer is trying with all his might, to wipe out the enemy, only this
time the enemy is not some wicked-looking character in a black suit wearing a white tie or donning a holster.
time the enemy cannot be seen with the naked eye. And, like human enemies, it is relentless in trying to bring down its victim.
the victim, this go-round, is an little boy whose only interest in this moment of time is to play, love his mommy and daddy
and probe the wonders of life with his inquisitive mind.
So, Andy, Jayden's daddy with an "S," must be the crime fighter
who stands at the ready to protect his little guy. And, Jenny, Jayden's mommy with a "J," will continue to hold up her end
of this long and heart-breaking vigil.
Singer said the Sheriff's Department, friends, family and even complete strangers
have been incredibly wonderful to him and his wife, which helps them to bear this heavy load. The medication, Andy said, is
debilitating "and takes everything out of Jayden." But he quickly adds that the children's hospital is a "great" rehabilitation
facility. He and his wife's only hope, however, is to try and make Jayden's life comfortable during this interruption of their
It is my hope that the miracle-working power of God will heal Jayden so that he, his daddy and mommy will go
back to the happy times about which Singer spoke.
Then, Jayden and his daddy, can poke out the eyes of that mean, old
enemy and live triumphantly as they did once before.
Theresa Nance, a former Herald News editor, is an ordained minister.
Sorry we haven't been keeping up with updates but Jay is real handful, in a good way. He has been seizure
free since thursday due to the valium, but today we will begin to ween him off the valium. Hopefully the valium has given
his brain a chance to give the anti seizure med keppra a chance to work. We will see over the next couple of days. Since Jay
has been seizure free he has been very vocal, very hungry, and very happy. He is trying to make many different sounds. He
is trying to sit up again but is still a little weak but getting stronger everyday. He is constantly moving around, kicking
and swinging his arms, he is doing very well with his right side (suffered from paralyisis) he even tried to feed himself
with his right hand the other day. Jenny & I are pleased to see Jay back on course, it seems we are back to where we were
about 3 months ago with things. It has been a setback due to the seizures but most importantly we are moving forward again.
Jayden's doctor from NY said she is very optimistic about Jay's recovery, she said Jay is having alot of abnormal brain activity
and seizure activity, but the fact he is doing so well now and that with time, healing and meds to control the seizures we
have a long long way to go, but hopefully Jay will be OK. That was great news, but we still a long road ahead and there will
probably be more obstacles but we will take them head on together. Jenny & I would like to thank Rev. Theresa Nance for her
wonderful article in the news paper http://www.bergen.com/page.php?qstr=eXJpcnk3ZjcxN2Y3dnFlZUVFeXkxNCZmZ2JlbDdmN3ZxZWVFRXl5NjYwMDMzMA==
we were flattered to be compared to superman, but we are no heros we are just parents of a very special boy who is the hero
here. And Christopher Reeve has truly been a inspiration for us and will never be forgotton for his amazing strength in life.
Thank you all for your continued prayer and support. Love Andy, Jenny & Jayden
We had a very good
today! Jayden got to go back to therapies again after 2 weeks away. He was happy to see all his therapist and everyone at
Childrens Specialized Hospital, he was full of smiles for everyone. He did some great sitting up, he was scooching his butt
to get around, and he even tried to get on his hands and kness and crawl. He rode the tricycle which he hasn't done in while
and he did great, he was even peddeling backwards, he was full of energy. He did some super playing in occupational therapy
and made a giant mess playing with foam. Jenny & I were pleased when Jayden tried to speak in speech therapy (he usually is
very quiet) he called Bob the builder John? and mumbled a couple of other things, he was doing alot of laughing. It is nice
to be back on track. We will Jay very carefully over the next couple of days as today was his last day on valium, we have
cut him down and now is the test and hopefully we won't see anymore seizures. We pray! Good night and God bless! Love Andy,
Jenny & Jayden
just a quick update on jayden. he's doing fantastic
these days. the next couple
of days will be a bit
tense, but we're praying for a smoother road to
recovery now. he's eating well and laughing all
time. he was playing in his room, focusing on every
toy. he was making himself laugh by putting a toy on
head and letting it fall down. he had us laughing.
i've attached 2 pictures of him in his room today.
to pray for him. prayers are being
answered everyday. thank you.
love & blessings,
andy, jenny & jayden
Real quick its been a very busy day!
Jay is doing great, no seizures thank God. He seems to be going through
phases that he went through in Childrens Hosp again. He is going through a agitation phase, where he is just non stop, swinging
and kicking and full of energy. He was full of energy and laughs today. We had a very nice visit from Jays teacher again today
and he did great with putting puzzle pieces in place. We also had a visit from the Bubba's who delivered the funds raised
from the golf outing THANK YOU ALL involved very, very, very much. Jayden is trying so hard, so very hard to communicate with
us, he is pointing at things and mumbling and screaming, soon it will all come together. Jay also had alot of laughs with
his uncle Joe and grandparents today. You'd figure he would be tired but he is bouncing around his bed yelling, so it will
be another long night, but we enjoy every minute. Thank you all for your continued prayer and support. Good night and God
bless. Love Andy, Jenny & Jayden
THANK YOU again to everyone who put together the golf outing and THANK YOU to everyone
who supported it. It really helps so much. Love you all!
Have Jenny & I been busy. Believe
me we are not complaining! But oh boy! Thank God Jayden has been seizure free for 10 days now and seems to being very good
without the valium. He has endless energy and has regained alot of strength. He does not stay still for a second, he scooches
aroud the floor on his butt with speed. He is trying so hard to crawl, he gets on his hands and knees and doesn't know what
to do, he has tried sliding his knees forward. He stayed awake all night friday night, we were playing with his toys in his
room until 4am. He is just so curious and does not want to miss a thing. He is constantly moving his mouth in a talking motion,
and trying every sound combination. He has become so comical. He loves to laugh at funny things Jenny & I do. He started to
hug us today, he just keeps pulling us close to him and gives us very tight hugs and won't let go, and of course we don't
want to either, they feel so good! He seems very restless again tonight so we are preparing for another all nighter. We are
very tired but very happy at the same time. Thank you all for your continued prayer and support. Love Andy, Jenny & Jayden
where do I begin? what a day it has been. jayden has
amazed us more today than ever.
he did great with
his therapies today. he did assisted
walking. he crawled better than he ever has. he stood
up with little assistance.
he played with a puzzle and
put the pieces in the right places. he did purposeful
play, including his right hand. he
hugged us and his
grandparents, lighting up when he saw them.
at home, he scooched everywhere pulling himself up
the couch. he took a play phone and put it to his ear.
he's starting to realize what objects are for. he
to be showing some understanding. when changing
him or dressing him, he didn't struggle as much and
his arms in the shirt.
the most amazing thing he did today, which put tears
in our eyes, was to brush his teeth.
we were amazed.
the simpliest things we do that are taken for granted.
this is huge for jayden, who has been through
and has had to relearn everything. things seem to be
falling into place for him and he's grasping so much
we are amazed every day with every little stride he
makes. i guess the moral of today's lesson is to
every thing your kids do. every little
accomplishment they learn is helping them to grow into
young adults and adults.
jayden has always been
extremely intelligent and advanced in everything he
has done. he's proving that again while relearning
the things he use to do. that's incredible and makes
us so proud and blessed he's in our lives.
love & blessings,
Jenny & Jayden
We have been so busy with Jayden. He is trying to do so much
and too much. He seems sometimes to be over stimulated. his strength gets stonger everyday and fights Jenny & I with everything
he does. He is pulling himself up on things to a standing position and will hold himself up for about a minute. He has tried
crawling again but usually falls over, he continues scooching on his butt everywhere. He is going through a very emotinal
phase where on minute he holds out his arms for a hug and gives you big hug. The next minute he is hitting and kicking you.
It frustration and painful for both Jenny & I. We sometimes forget the amount of brain trauma Jay sustained and expect him
to listen to us and do things the right way. But we must take a deep breath and try ti imagine whats going on in his head.
He really is doing a great jog through all of this. Everyday he shows us new things. We are so proud of him! Its just such
a long road and Jenny & I wonder if we will have any sanity left at the end of the road? Gotta go there is yogourt everywhere.
Love Andy, Jenny & Jayden
Check out www.jaydensjourney.com
Super Jayden is at
it again. Today he did great! Just a couple of things he has done the past couple of days. He is really beginning to imitate
facial expressions and things Jenny & I do. Yesterday when I gave him thumbs up he gave me thumbs up, and tried to imitate
me pointing. Today he imitated me giving thumbs up and pointing, then I raised both my arms and swung them in the air, so
did Jay. But then I began clapping and Jayden clapped with me for a while. We were dancing waving our arms and so did Jay.
He had about a minute of speaking which he was definatley saying something. We let him scooch all over the house on his butt,
he is so interested in everything. We put Jay in his playpen and he pulls himself up standing and holds himself up for about
a minute or so, then lets himself down slowly to a sitting position. But most impressive today was he was using his right
hand to pick up everything first and transfer to his left. He seems to be defeating the paralysis. He is doing so much. Laughing
at funny things he sees, he is giving the best hugs! He is giving us a little problem eating today but we were able to substitute
with protein drinks. He seems to be calming down a little bit, a little less fussing and swinging, we hope this phase is passing.
Over all he is progressing at a great rate the past few days. We could not be more proud of all he does everyday. While it
is very frustrating and weighs heavy on our hearts everyday, to see him coming along so good now makes it a little easier.
Thank you all for your continued prayer and support. We had a great day with Jenny's family today, it was nice to get out
of the house, thanks. Love you all! Andy, Jenny & Jayden
Please check out www.jaydensjourney.com for info, pictures,
and so much more!
2 new photos of Jayden on his swing today. Love Andy, Jenny
JAYDEN FOR PRESIDENT!
Alright Super Jayden is doing okedokee. He has been keeping us
very VERY busy latley. Just some more of the things he has accomplished the past 2 days, he is imitating hand gestures very
good. He is standing up unassited in his playpen and taking a few steps sideways and forward, and sitting back down slowly.
He is stacking blocks, as high as he can then knocking them over and laughing, then starting over. Yesterday Jenny gave him
a sippy cup, a cup with a straw attached. Jayden took it with both hands and immediatley began sipping the juice and swallowing,
it was pure memory an brought tears to our eyes. Today again he drank from the sippy cup and when he was done handed it to
Jenny. Its all there, the fog is hopefully lifting. He is sitting on the floor in front of me right now putting large puzzle
pieces in the right places, I spoke too soon now they are flying across the room DUCK! He has really got the strength back
in his right hand. Gotta go its medicine time now, its takes Jenny & I to hold him down for this. Love Andy, Jenny & Jayden
Today was a great day. Jayden did some incredible
standing and walking today while holding on. He
in OT and had lots to imitate in
speech. He's amazing. He threw kisses today for the
first time and he's becoming extremely
clingy. I can't
leave the room with him protesting. That's fine with
me. He can cling onto me all he wants. He's getting
and more confident to stand and he pulled himself
up several times on the couch. He needs to be watched
as he is very quick.
Everyday something new and everyday one step closer to
bringing us dinner, Glenn : )
Love & blessings,
Andy, Jenny, & Jayden
Jenny & I are exhausted but for wonderful reasons. Jayden stood up holding on in his playpen for 35 minutes today. Then I
kept putting toys on opposite ends and he he would walk slowly around the playpen to get the toys. He is very slow and sometimes
wobbly but he keeps going. His determination is incredible! He crawled up the stairs twice yesterday. He wants no assistance
from Jenny or I, he wants to be totaly independant. He scooches around the house and looks at everything. He still tries to
talk with us, but we are unsure if Jayden is hearing us at all some times. He may have a hearing process problem, or just
can't focus with everything going on. We need to do more hearing test to find out for sure. Jayden is so full of life. He
is constantly doing funny cute things to make us all laugh. He is focusing on objects and TV for longer periods of time. And
is hitting us less, but you have to be careful with things in his hands, one minute he is playing nice and then things are
flying full speed. The injuries are a small price to pay, and we'll take it. He is really doing great things everyday. We
are so proud! He truly is a miracle boy. Thank you all for your continued prayer and support. Always remember you have played
an important part in this journey, and we will never forget all the things you have all done for us. Good night and God bless.
Love Andy, Jenny & Jayden
We had a very busy weekend. Saturday morning we went
a birthday party for Caitlin and Dylan, which are 2
of Jayden's classmates from Union Con. Although we
many people from Union Con since Jayden
became ill, it was great to be there and see everyone.
It was held at Bellevue
Theater and we saw The
Incredibles. Jayden watched a good portion of it
before he became ansy. Jayden really lite up
his friends, especially his buddy, Kyle. Jayden
instantly smiled and hugged Laura, Kyle's mom and was
excited to see Kyle and hugged him. It sounded
like he said, "hi, Kyle" to him at one point. It was
a great experience
for Jayden and I'm sure it brought
up some memories. Thank you for including us in their
special day, Jennifer.
also were able to speak with JP, who is Casey's
dad, another classmate. He has been an inspriration to
us since we were
told of his life experience. He truly
is an amazing person, who has overcome so much and
achieved so much in the process.
Thank you JP and
Penny for sharing that time with us.
Sunday, we went to the Montclair Art Museum for a
of artwork by children who have had or have
illnesses. It was great to see people from Children's
Specialized and to
see so many uplifting people and
children. Jayden watched the show and did great.
He's becoming stronger everyday
and doesn't sit still
for a minute. He's active, he's vocal and he's
laughing all the time. We couldn't be happier with
progress. We continue to move forward.It has been 7 months to the day since Jayden first became ill.
Andy, Jenny, & Jayden
Well, I guess I should begin with JAYDEN WALKED
LITTLE ASSISTANCE. Can you tell I'm a little
excited?!!! Jayden shocked us all, including his
physical therapist with
incredible standing, which
lead to walking holding her hand to walking with a
walker on his own. She stayed close by
to help him.
were shocked. It was totally unexpected, but
wonderful. He did great in his other therapies as
But the walking, was by far, the most
outstanding moment of the day. He's also trying
hard to communicate
with us. He is so vocal and so
determined. I hope it all connects real soon. It
be so frustrating for him. It's
for us, but one day it'll happen. I've attached 2
photos of his big moment today.
Andy, Jenny & Jayden
Today was another great day for Jayden. He had pool
which he hasn't done in quite a while. He was
very excited and happy to be in the pool. He held
himself up by standing
and leaning on the rails on the
side. He was just tall enough. He would put his face
in the water and quickly learned
not to do that when
he inhaled the water. He stayed tight-lipped after
that. The pool therapist said that she rarely
patients who reach physical goals as well as cognitive
at the same time. They seem to be extremely pleased
Jayden's progress. He shocks us all. He also did
the best walking yet with a walker. He was not happy
with it, but it
motivated him to move.
Jayden saw a cereal commercial and it was pretty clear
to me when he said "I want Honey combs."
I don't think
speech is too far behind the other goals he's
Today was Andy's first day back to work.
some adjusting but we'll manage. Thanks to my parents
who came over. We miss Andy though. Seven months of
3 of us together all the time, it's hard to let go
I've attached some picts of Jayden in the pool. He
Love & blessings,
Andy, Jenny, & Jayden
The end of a busy,
but great week. Yesterday we had a another special visit from Jayden's teacher Ms. Crane who is helping with Jay's relearning
skills. He was playing with puzzles with Ms. Crane so last night we took out some of his puzzles and we were amazed at what
he did. Jayden took the pieces out of the puzzles and lined them up next to the board in a perfectly straight line. Then he
took one piece at a time and studied it looked at the board and tried to put them in, some times he got it on the first try.
Some times he had the wrong piece but kept on trying until he got it, if he did not get the piece after about a minute he
would place it back down in the line and go to the next piece, after getting the next piece he went back to the one he missed
and worked it till he got it. He would not let Jenny or I help, he would brush us away. Today he did the same only a little
faster, and after getting each piece he would wave his hands in the air and smile. We are amazed at this progress. He is also
pulling himself up to a standing position and leaning his butt against the wall and taking very small side steps sliding his
butt against the wall and his hands out in front of him for balance. Today he had another great teacher his cousin Joseph
who is about the same age as Jayden and best friend. Jayden tried to imitate everything Joseph did. All Jayden says now is
"come on". I returned back to work this week and it has been so great to see all of my family again at the Sheriff's Department.
I must have said thank you at least a thousand times today, but it will never be enough for all everyone has done for us.
It is hard to go back to work and leave my family for a couple of hours, but we must get back into a normal routine once again.
And going back to work with such incredible people makes it enjoyable! I will never compalin about work ever again. To everyone
at the Passaic County Sheriff's Department your support has been overwhelming since the beginning and still continues to be
everyday.You will never know how much you have done for us in so many ways! We thank you and love you all. And that goes for
all of you, evrybody who has done so so so much on a daily basis. As Jayden does better and better everyday remember you all
have played an important part in his survival and recovery. We could not have come this far or continue without your prayer
and support. THANK YOU! THANK YOU! Good night and God bless. Love Andy, Jenny & Jayden
Just a quick
update on Jayden. Today was my first day
back at work. It was great to see the wonderful people
I work with. Andy took
Jayden to therapy. Jayden did
great in PT. His therapist brought out a puzzle for
him, which he had not seen. Since
he's fascinated with
puzzles, she made him walk to get each piece. He
walked with her assistance and completed the puzzle,
was amazed. He also did great in the pool and was
worn out for OT and speech.
When I came home, we played in his
room. He played
with his toy beeper and pressed the buttons, which
make noises. There are no lights or vibrations and
reacted to the noise and smiled. He also seemed to
turn when I called his name. That time, it seemed to
be a delayed
reaction. He also imitated a noise I was
making. We've been so concerned about his hearing
lately. He has responded
to sound in the past, but
hasn't lately. It could be due to the fact that he has
so much other accomplishments that
he's focusing on.
So it was wonderful to see him react to the sounds
today. Hopefully, he's processing what he hears
I've attached 3 picts of Jayden with his teacher from
Union Con, who comes to see him every Thursday
images of Jayden working on his puzzles.
Love & blessings to you all,
Andy, Jenny, and Jayden
Well we just got in from Presbyterian hospital after a 24 hour EEG test to see how Jayden's brain
wave are doing. Jayden was not happy to have all the electrodes glued to his head but once they they were on and his head
wrapped up he did great. The doctors came in this morning and told us things are looking much better from his last EEG. We
were told last time Jay was having constant seizure activity going on, now he is just have a few and they are spread apart
but most importantly not breaking through as physical seizures. They are very happy with his progress and said it is a slow
healing process, they were very very impressed with how far Jayden has come since his last visit with his physical and mental
improvements. We know with time and continued healing Jayden will fine, Jenny & I have never had a doubt and never will! Well
it sure is nice to be home and Jay can just do whatever he wants and he his happy about that. While Jay was being examined
by one of the doctors she was testing his reflexes with that little rubber hammer hitting his elbows, Jay grabbed the hammer
and began hitting her elbow lightly. He then took her stethescope and put it on his ears and listened to Jenny heart. He does
so well with all the doctors and nurses and seems to understand and cooperates. We are so proud. I held Jayden's hands while
he walked for one of the doctors, she was amazed. Jay has come so far these past few weeks, we cannot waitt to see what the
next few bring, and then beyond that. Thank you all again for your continued prayer and support. Love Andy, Jenny & Jayden
Just wanted to add some more information to Andy's
update yesterday. I spoke with Dr. Leary and
she noticed quite a lot of seizure activity on his
EEG. There is improvement, but it is still active. She
that the activity he's experiencing can interfere
with his progress, but is very happy with the progress
to make even with the activity. She has
increased his morning keppra dose. She hopes to
control the seziure activity
in the brain. The area of
seizures are on the left side of the brain, which is
where the strokes occurred. She says
it is possible
that the seizure activity is interfering with the
processing of sound and can also effect his speech.
basically, we would probably see more improvement
if there wasn't so much seizure interference. We're
the seizure activity can be controlled
and that Jayden will be able to speak and respond to
our voices very soon. We
still will test his hearing
and do whatever we can do to help the process along,
but until his EEG is close to normal,
there may be
I've attached some pictures of Jayden at Columbia,
with his EEG head gear. He looked
too cute. I couldn't
A note from Andy:
On a sad note I just found out today that a lifelong
of mine mother has passed away. Mrs Lindemann
has been an amazing support for Jenny, Jayden and
myself, she has sent
some of the most beautiful and
uplifting emails over these past few months. She has
always had us in our prayers, and
now she will always
be in ours. My friend Eric told me today how they
spoke about Jayden all the time, and how now we
another Angel in heaven watching down over Jay. After
I read your email today Eric I felt your mom here in
room with us just full of love, she was a very
special person and now she is a very very special
Angel to us. I ask
that you all please include Mrs
Lindemann and the whole family in your prayers. Eric
my brother we love you and our
thoughts and prayers
are with you and your family during this difficult
time.Your family has been there for us and we
for you if you need us. -Andy,jenny & Jayden
Awesome! Thats all I can say about this
kid. Jayden started out with a little cold yesterday and he was a little cranky. Today he still has a runny nose, coughing,
sneezing but his energy is incredible. He has been imitating things he sees on TV today, such as we were watching Mr. Bean
and Jay was doing all the comical things Mr. Bean was doing. He has a little dancing snowman that sings "ice ice baby" (thanks
Joe & Deb) and Jay keeps on pressing the button and standing up next to the couch he dances with it, shaking his butt side
to side. The best so far yet is today he pulled himself on the gate in the dining room. He then walked holding onto the wall
then continued walking holding onto the china hutch, then he held out his arm and leaned over to the dining room table and
continued walking around the table. So far today we have walked around the house twice with me just holding his right hand.
His balance is getting so much better. He has so many new sounds coming out of his mouth again. I am just in awe right now,
the proudest dad no doubt about that! I gotta go get ready for work now. Good night & God bless. Love Andy, Jenny & Jayden
Sorry once again we have not been keeping daily updates, but our days are very busy and long
with Jenny & I back to work. Just to let you all know though the power of your continued prayer and support is working miracles
by the minute. Jayden is really doing some great walking with very little assistance. Tonight we were amazed for a couple
of reasons. We went to the Brownstone for a meeting with Dan, Leo, Shannon , Patty & Jeff who worked so hard on the Golf outing
for Jayden. We once again cannot thank you enough for all you have done for us, and we thank everyone involved for the money
raised is truly incredible. The money is nice but what is more important is that with every dollar raised it came from from
peoples hearts not there wallets. Along with every dollar also came a prayer and support for our family from yours. Dan Hackes
thank you again you will always be a very special part of our family. Leo Fiorilla it was very nice to sit down and talk with
another father who has been on a similar journey your strength is inspirational, and please thank your cousin Leo for his
incredible work. There are so many amazing people who have done so much for us on a daily basis it is truly overwhelming.
A very special thank you to Sheriff Speziale for stopping in and spending some time with us tonight, you have played a very
important role in Jayden's recovery and the strength and support you have given our family is truly amazing. The entire Passaic
County Sheriff's Department has really become part of our family, and we could not ask for a better family. For those of you
at the dinner tonight you got to see a surprise to all of us, Jayden decided he wanted to walk everywhere tonight, so jenny
and each grabbed one of hands and let him lead the way, it was the most walking he has ever done we are still amazed, thank
you to Chief Comparetto and Undersheriff Dombroski for clearing the way so Jayden could walk through the crowd and for sitting
us a the Sheriff's table. We continued walking even more later in the evening, Jay just wanted to walk and walk and we could
not be more pleased. It was so nice to see so many friendly loving faces, thank you to all of you for you kind words and support
tonight. Please alaways remember every time you read or see Jayden's progress you are a part of it. So be proud of Jay but
also be proud of yourselves for you have worked miracles, and Jenny & I will never be able to thank you for that! So tomorrow
when we sit down for thanksgiving dinner we will be very thankful to God, all the Angels that watch over us, our amazing families,
and each and everyone of you for the wonderful things you do for our family. And of course the most important thing we will
be thankful for is Super Jayden! HAPPY THANKSGIVING to all! Love you so much! Love Andy, Jenny & Jayden
P.S. Wish you a
speedy recovery Buckethead. Luv ya!
Hope your Thanksgiving was a great one. We had
a super day with our family. Jayden just wanted to walk all over Jenny's parents house, so he did. We just held his hand and
let him lead the way everywhere, up the stairs all over the house. Today Jay wanted to go for a walk outside so we bundled
him up and headed out for a walk, we saw our neighbors Bobby & Joan so we all went for a walk. Bobby kept slowing us down
though with all of crying how happy he was( just had to throw that in Uncle Bobby). Jayden walked a ggod distance before getting
tired. Then in the afternoon we went for another walk outside and Jay did good once again. But after dinner I was walking
Jay around the house and Jenny was across the living room and I stopped walking and he wanted to go to mom, so he had to go
on his own and he took 3 steps all by himself with no support right to Jenny. Then I would let him stand on his own just keeping
my hands close enough to catch him when he lost his balance. He would stand balancing by himself for 10 to 30 seconds at a
time. He really is doing amazing. Jenny and I have noticed these past 2 days a couple of instances where Jayden seems to definatley
be hearing us. We feel the increase in the medicine is definatley helping. We are once again so thankful for how far Jayden
has come. We always thank you for all all of your continued support. And we have to give alot of credit to all of the doctors
and nurses along the way and the amazing therapist that continue to work with Jayden at Childrens Specialized Hospital, they
all should be very proud! And of course we always thank God and all the Angels that watch over us. It is truly a miracle to
watch Jayden everyday! Thank you for being a very important part of it. Love Andy, Jenny & Jayden
Jayden has been keeping us on our toes and his too! He just continues to want to walk everywhere whith our assistance
and every now and then he gets daring and takes about 3 or 4 steps by himself. He did great in therapy yesterday, he walked
around with his therapist Laura and looked in a mirror and when he saw his hair standing up (hat hair) he laughed and tried
to push it down. He has been flying through his puzzles, they don't even seem to be a challenge anymore we are getting some
more. He seems to be hearing a little bit every now and then, we are still so unsure its frustrating. Well its almost christmas
and our 8 foot Spongebob is up on the front lawn and Jayden just loves it! Well I gotto go there aren't enough hours in the
day. Thank you for your continued prayer and support ! Love Andy, Jenny & Jayden
everyone is doing good out there. Sorry once again but Jenny and my schedules are so busy we really don't have much time to
do the updates. We barely see each other now and we share daily information with each other when I get home after midnight.
So what has been happening the past few days is Jayden continues to improve a little bit almost hourly. We are constantly
seeing new and great things. We went for an MRI this week and should know the results next week, hopefully they will show
more improvement of Jay's brain. We met with Dr. Yalamanchie from Childrens Specialized Hospital this week and he was very
impressed with Jay's recovery and the way things are going and has a positve outlook. Dr. Y has been with Jayden from the
begining and seems very pleased. Jayden did very well with his therapies this week, although we cancelled pool as Jay was
getting over a slight cold. Jenny & I are now beginning to stay out of Jay's therapies so he can focus on what he needs to
do, we are a distraction now. We can watch from a distance or throug 2 way mirrors. It is so hard since we have been right
by his side for every step, but we know he must focus on things he must do. And he is doing well, he gets upset for a few
minutes and then he becomes distracted by the therapist and does great. We have noticed some definate hearing responses this
week. The hearing processing seem to be getting a little better, we hope. Jay has continued to do some very good walking,
We noticed his physical therapist Laura just lightly holding the back of his shirt while he was walking the other day, so
now we are doing the same. Jayden is a little slow when he starts to walk but when he becomes comfortable and really gets
going with just a little support, I think he just likes to know someone is right there. Usually I will get within a couple
of feet from the couch and then let go and he takes 3 or 4 steps on his own to the couch. The puzzles he has are no longer
a challenge for him, he just zips right through them now. He is letting us know when he needs to be changed by pointing to
the diapers on the shelf and lying down. As for eating we now show him choices of what he can have and will either shake his
head no or yes and when he shakes his head yes he gets very happy. It must feel great for him to finally be able to communicate
a little with us. He does however still become very frustrated when he is trying to let us know something and we don't understatnd,
but when we get it he shakes his head yes and claps and gets excited. He is helping when he gets dressed and undressed. Things
just keep coming back to him it seems slowly. He continues to make us laugh, he really enjoys being comical and he enjoys
hugs and kisses lots of kisses, and we have plenty of them. He truly is amazing to watch and we never know what miracle is
going to happen next. He is doing a Super Job! Once again thank you all for your amazing prayer and support! You are all avery
big part of this miracle! Love Andy, Jenny & Jayden
Today was a great day for therapy. Jayden did
great walking into and out of the pool. He made sure
to leave his mouth closed not to get any water inside.
took steps on his own in physical therapy and he
also did that at home with me. He just pushed himself
off the couch
and took some steps on his own. He
shocked me. He also did some great drawing with
markers in OT and played really well
in speech. He
imitated the speech therapist in sign language letting
her know that he wanted her to blow more bubbles.
had a great attitude and is making different sounds
again. He's trying desperately to talk and I truly
talk soon. Maybe it's wishful thinking, but
I truly feel he will.
Friday, Jayden has an evaluation for pre-school/early
We're hoping to get him in a program
that will catch him up to where he needs to be. The
town may actually have a program
pt, and ot as well. Of course, the evaluation will
happen on his birthday. It's not exactly what
him to do on his day, but hopefully it'll be fun for
him and Andy and I will definitely make his day as
as possible. He'll be the big 4 and we are so
blessed to be able to share this day with him.
Love & blessings,
Jenny, and Jayden
SuperJayden is doing great! He is doing new things almost every
hour. Sorry we can't keep up with daily updates, but Jenny & I are swamped between work, therapies, doctors, and keeping Jay
busy. He is like a sponge absorbing everything, and just wants to explore and learn. He is still doing great walking and getting
more confident and standing on his own and taking a few steps with no help. He is walking all over the house holding onto
things. He is undressing and dressing himself with very little assistance. He is feeding himself more now, and goes by the
kitchen and starts pointing when he is hungry or thirsty. When we find what he wants he shakes his head yes very happily,
and when we hold up the wrong thing he shakes his head no with disgust on his face. He is communinicating with us a little
more with hands and expressions and shaking his head yes or no. It is still very hard and frustrating some times. He is doing
so amazing! Just now he saw his toothbrush and pulled himself up and grabbed it and began brushing his teeth on his own. It
is all there under a fog still. He is trying so hard and soon it will all come together. Tomorrow being Jayden's birthday,
the most important one yet we are going to take him to see the Spongebob movie and really enjoy the day. To think where he
was a couple of months ago, and wondering where Jay would be at on his birthday, he is truly incredible! We are truly blessed
and thankful. We still have a way to go but we will get there. Jayden is a miracle to watch every minute. Thank you for your
continued prayer & support!. Love Andy Jenny & Jayden
4th BIRTHDAY JAYDEN!****
Good evening to all,
Yesterday was truly a great day for us! Jayden's birthday was very very special. We were
so unsure months ago if this day would come, or what condition Jay would be. He came downstairs yesterday to house full of
balloons and gifts. He was very happy and full of excitement. We had breakfast and then had to go for an evaluation with some
people from the Bloomfield Board of education. It went very well and they seemed impressed with Jayden, we have many more
meeting and evaluations to exactly decide where Jay should be a special education class. We then came home and opened a bunch
of presents and had a whole lot of fun. And then came the best part of the day, we headed out to see the Spongebob Squarepants
move. after 15 minutes of previews and Jayden getting restless the movie began and Jay just lit up with excitement. He sat
through the whole movie and really enjoyed it and laughed and clapped throughout it. After we came home again for dinner and
Then went to Jenny's parents house and had a little party there with our family, it was a very nice time. we came home played
a little bit and put Jayden to bed. It was and exhausting day for us, mentally & physically. A very special day with a very
special boy, we could not have asked for more. Thank you all for you birthday cards and emails, and thank you so much Jennifer
Ladda for the wonderful gifts from your family. Jayden was in great spirits today and spent the day playing with all the great
toys, puzzles and learning gifts he recieved. We are truly blessed with a miracle and everyday is like a birthday with Jayden.
We could not be happier! Thank you all for your continued prayer and support. Love Andy, Jenny & Jayden
quick Jayden is doing great! We have seen a couple of times the past few days of memories from before. And even some good
responses to sounds and noises. He is truly improving so much everyday. We just need more hours in the day to get everything
done. Thank you for your continued prayer and support! Love Andy, Jenny & Jayden
been another busy week so I'll let ya all know whats been going on. Jayden of course is doing great, he is learning things
at an incredible rate and surprising us everyday when he does something new and great. He is doing so much more than just
puzzles now, he is beginning to follow our commands and repeat things that we show him. He is grouping things by color or
size or shapes, he is putting shapes in there slots by just looking at them. He is doing some amazing problem solving, and
he is playing so nice with his toys. Jay had a hearing test on friday, but itis still too early to tell,but we know Jay can
hear. Today Jay and I were sitting on the couch and Jenny was out shopping, when she came home she put some packages in the
vestibule as soon as the front door opened Jay turned to me and said "mom". Jayden could not see the door in any way, and
as Jenny brought 3 packages to the vestibule 3 times Jayden responded to the outside door opening and turned and looked. Without
a doubt he heard the door 3 times. He had a checkup on friday and he is doing great! Jayden is doing very well with communicating
with us with yes and no and pointing to things. He is playing catch with Jenny & I and throwing with both hands and today
he was learning to catch. His spirit is amazing, he continues to laugh and smile all the time and do comical things. He is
so beautiful and so amazing to watch. This is going to a great Christmas, Jenny & I have the best present ever, and as always
we have all of you to thank! We love you all Andy, Jenny & Jayden
We wish you all a very merry
Just a quick update on our holiday. The best present
we could ever get is our son.
This christmas was extra
special with Jayden. He was happy and excited. We
spent christmas eve by my parents. Jayden
had a great
time with the family, especially with his cousins who
always make him smile. He was really into the presents
was anxious to open and play with his gifts.
Chritsmas day tired him out and we opened presents
throughout the day.
We had a lot of presents and he
was a bit overwhelmed, so we did a couple of presents,
here and there. He loved his
We're just so grateful and blessed to have Jayden in
our lives. This has been so special and we look
to many, many more holidays with him. He is
our greatest joy.
I've attached some pictures of him christmas eve and
I just want to thank my wonderful husband for always
being such a treasure in my life. He is always a great
and husband. I'm so proud of him and admire him
so much. I love you, Andy.
Love & blessings,
Andy, Jenny, and
Thanks Michelle and Bill for the gifts and cards. As
you can see in one of the pictures, you're playdoh
was a hit.
Thank you to everyone for all your wonderful cards &
your holiday season is a good one. Super Jayden gave us the best holiday ever. He started walking on his own the day after
Christmas, he just stood up at the couch and walked to the fishtank. He is continuing to want to walk everywhere and is doing
a great job. He is still a little wobbly but doing great and does not want much assistance. He is even turning around while
walking. Jay had a great day today in his therapies, he played very nicely in the pool, did some great walking and stair climbing.
He was watching Little Bill tonight and when the cartoon character said hello Jay said hello back. He is turning more and
more to sounds everyday. Jenny & I have also noticed the past couple of days Jayden seems to get emotional about the fact
he can't do things and is realizing what is going on. It is hard for us to watch, but we feel it is motivating Jay to strive
even harder. He is really doing great things everyday. We are so proud of him. Thank you all for your continued prayer and
support. We ask that you please pray for all those affected by the tsunami, and if you can please support any relief fund.
We wish you all a very happy and healthy new year, and thank you for helping us throug 2004. It was a tough year but we know
2005 will be a better one, as we continue up the mountain on our journey. Love Andy, Jenny & Jayden